Health

AASET: Standing up for the Change in Health Care Futures for Autistic Women

October 20, 2018 Spectrum Women

Autistic Adults and other Stakeholders Engage Together (AASET) is a Patient-Centered Outcomes Research Institute engagement project that aims to create a group of community stakeholders and researchers. Our group has anticipated in developing a common agenda to address the most pressing issues facing autistic adults. In that process, the project asked stakeholders how, when, and why they would want to be engaged in research. In this project, we have learned that one very important priority is to address the needs of hundreds of thousands of women on the autism spectrum, often who have gone undiagnosed until adulthood. These women responded […]

Featured

AUTISM, LITERALLY!

October 19, 2018 Spectrum Women

A Spectrum Women collaboration, edited by Maura Campbell, with Barb Cook, Jen Elcheson, Christine Jenkins, Terri Mayne, Kate Ross and Lisa Toner Morgan. Us folks on the autistic spectrum have a tendency to take things a bit too literally sometimes. Even when we get the meaning of a phrase, though, our active imaginations mean we can have great fun when we take things verbatim… 1. “I’ll have to call you back — I’m in the middle of my dinner”   That could get messy. 2. “I’m just going to go jump in the shower” Mind you don’t slip! 3. “I can’t […]

Advocacy

Stranger in a Strange Land: The Autistic Expatriate – Jeanette Purkis

September 3, 2018 Spectrum Women

I was at a conference this week and it generated some interesting thoughts in my mind. The light bulb moment was when a speaker talked about their child being ‘resistant to using the telephone’. I would have said that the child didn’t like using the telephone and I think the speaker would have too if the child were not autistic. Autistic people are frequently pathologised and our experiences seen in terms of being somehow deficient and in need of fixing. I do not want to detract from the conference, which was great, but that comment really set me thinking. I […]

Insights

15 THINGS YOU SHOULD ABSOLUTELY SAY TO AN AUTISTIC WOMAN

August 20, 2018 Spectrum Women

A Spectrum Women Compilation, edited by Becca Lory Hector, Jen Elcheson and Maura Campbell. Contributors: Barb Cook, Dena Gassner, Renata Jurkevythz, Lisa Toner Morgan, Liane Holliday Willey, Christine Jenkins, Terri Mayne, Kate Ross, and Anita Lesko. We received such an AUSOME response to our list of things you should NEVER say to an autistic woman that we had to compile a sister list for it of some really great things you could, and should, ABSOLUTELY say to an autistic woman (or any autistic adult regardless of gender). And since you guys finally felt the burn of being left out last […]

Special Feature

Meet the Spectrum Women Book Authors: Barb Cook

August 21, 2018 Spectrum Women

The Spectrum Women and authors of this book, Spectrum Women: Walking to the Beat of Autism, felt it would be a great opportunity to tell you a little about ourselves and the reasons why we were part of this incredible project. Each Spectrum Woman has a unique story to tell and today, on the day the book has been released to the world,  we would like to introduce you to Barb Cook…   Today our book was released to the world, being transported by postmen on bikes, carried in vans, on trucks, via boat and carried by planes across the […]

Featured

15 THINGS YOU SHOULD NEVER SAY TO AN AUTISTIC WOMAN

August 13, 2018 Spectrum Women

A Spectrum Women Compilation, edited by Jen Elcheson and Maura Campbell Barb Cook, Dena Gassner, Renata Jurkevythz, Anita Lesko, Becca Lory, Terri Mayne, Jeanette Purkis, Kate Ross, Lisa Morgan Content Warning: ableism, paternalizing, bullying, sexism (pretty much a smorgasbord of awful). We present to you another collaborative piece where we discuss a bunch of things people should not say to autistic women (or, indeed, to any autistic person, female-presenting or otherwise) and why saying them can be negative from an autistic perspective. 1. “Are you sure you’re autistic?” Trying to talk someone out of their diagnosis, questioning their identity, saying […]

Featured

Meet the Spectrum Women Book Authors: Dr Michelle Garnett

August 3, 2018 Spectrum Women

The Spectrum Women and authors of this book, Spectrum Women: Walking to the Beat of Autism, felt it would be a great opportunity to tell you a little about ourselves and the reasons why we were part of this incredible project. Each Spectrum Woman has a unique story to tell and today we would like to introduce you to Dr Michelle Garnett…   When Barb invited me to be a co-author of “Spectrum Women,” involving reading 19 chapters written by 15 autistic women about a diversity of life topics, I could not reply quickly enough to say “Yes!” in case […]

Parenting

An open letter to ‘martyr’ parents – Jeanette Purkis

July 15, 2018 Spectrum Women

I will preface this by clearly stating that I have no issue with parents of autistic kids. It would be rude — and foolish — if I did, considering that a lot of my advocacy work is with parents. I recognise the vital role parents have in supporting their kids to grow to be strong and fulfilled autistic adults. Parenting can be very difficult and parents usually do an amazing job. This letter relates to a small subset of parents within the world of autism… I was in conversation online in response to a post about a TV program featuring […]

Spectrum Women Authors

Meet the Spectrum Women Book Authors: Samantha Craft

June 28, 2018 Spectrum Women

Spectrum Women: Walking to the Beat of Autism is now in its final stages of publication, preparing to be printed for the wide world to see by Jessica Kingsley Publishers, we, the Spectrum Women and authors of this book, felt it would be a great opportunity to tell you a little about ourselves and the reasons why we were part of this incredible project. Each Spectrum Woman has a unique story to tell and today we would like to introduce you to Samantha Craft…   There is a popular quote by American anthropologist Margaret Mead that reads: ‘Never doubt that […]

Advocacy

If Neurodiversity Doesn’t Challenge You, You’re Not Doing It Right by Maura Campbell

June 23, 2018 Spectrum Women

“Would you like to pet the lambs?”  This story comes back to me whenever I have to check in with myself on whether I’m ‘doing neurodiversity right’. Let me explain. It was shortly after my son’s autism diagnosis, and many months before I’d cottoned on that I was also autistic. We were visiting an open farm as part of a large group of families, enjoying the opportunity to meet other parents raising kids on the spectrum.  Our lives had become very small in those early days, as we tried to process what autism meant for our beautiful boy, and even […]

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