Ehlers-Danlos Syndrome

Disability Free December — Linda Wemyss

May 4, 2017 Linda Wemyss

A few years ago, I had had enough of disability to last me a lifetime. I have Ehlers Danlos Syndrome (EDS) which involves faulty collagen, which is the glue that holds our bodies together, so I am literally falling apart. Ehlers Danlos in my case, involves multiple joint dislocations and subluxations every day, generalised pain and fatigue, a seven year old migraine, a neurological condition called dysautonomia, and a wide range of medical problems involving my organs. I use a wheelchair. I also have autism, Complex Post Traumatic Stress Disorder (c-PTSD), anxiety disorder, dysthymia, and a few common medical problems […]

Autism April

Autism and Ehlers Danlos Syndrome (EDS) -12 Management Tips- Linda Wemyss

April 12, 2017 Linda Wemyss

Having Autism or a Physical Disability on their own can be hard enough to deal with in a world that is as ableist as this one is.  Having both together can be downright infuriating and frustrating. There are some real concerns when it comes to physical disability for autistic people.  Autistic people die, on average, 18 years younger than our neurotypical peers (http://www.sciencemag.org/news/2016/03/people-autism-spectrum-die-18-years-younger-average).  While some of this can be accounted for by higher rates of drowning (for those also with intellectual disability), and epilepsy, there is also concern that people with autism may have issues with expressing their concerns to […]