Featured

Nightclub Nightmare & The Day I Stood Up For Myself – Jen Elcheson

May 28, 2017 Spectrum Women

Anyone who knows me is well aware that I am not the kind of person who likes to go out much and explore uncharted social territory. It is a strong innate dislike as I am quite introverted and not much of a people person. However, in my younger days, before I had come to terms with being an autistic introvert, I desperately wanted to fit in so bad.  When I could muster the courage to do so, I would occasionally step outside my comfort zone and make myself do things many others would hardly bat an eyelash at. I would do them whether I liked them or not, even at the expense of my […]

Featured

How does it feel, to live in my “own world” ~ Renata Jurkevythz

May 19, 2017 Spectrum Women

A very common statement people make about autistics is how they “live in their own world”. For non-autistics it can very much look like the person is locked in, in a parallel world, not acknowledging what goes on around them. For each individual on the autism spectrum, this “inner world” definitely feels different and may have an effect on their interactions with the world around them. Here, I want to explain my personal experience of being in my inner world. Some may resonate with my personal experience and for others it may be completely different. But as human beings, we […]

Featured

Salads, Spreadsheets & the Spectrum: The Fight that Has Nothing to Do with Food – Jennifer O’Toole

May 7, 2017 Spectrum Women

**Content Warning: Eating Disorders, Self-Harm Including excerpts from Sisterhood of the Spectrum: An Asperger Chick’s Guide to Life” Some years ago, psychologist Carol Dweck took a good, hard look at a bunch of very bright fifth-grade boys and girls. Specifically, she observed what happened when these kids were presented with new concepts — confusing information meant to cause them a bit of frustration. How, Dr. Dweck wondered, would they handle the stress? Among the girls in the study, the higher the IQ, the more likely they were to give up when asked to learn something that was particularly foreign or […]

Ehlers-Danlos Syndrome

Disability Free December — Linda Wemyss

May 4, 2017 Spectrum Women

A few years ago, I had had enough of disability to last me a lifetime. I have Ehlers Danlos Syndrome (EDS) which involves faulty collagen, which is the glue that holds our bodies together, so I am literally falling apart. Ehlers Danlos in my case, involves multiple joint dislocations and subluxations every day, generalised pain and fatigue, a seven year old migraine, a neurological condition called dysautonomia, and a wide range of medical problems involving my organs. I use a wheelchair. I also have autism, Complex Post Traumatic Stress Disorder (c-PTSD), anxiety disorder, dysthymia, and a few common medical problems […]

Latest News

My Life – Barbara Schaefer

May 10, 2017 Spectrum Women

I remember the day last April when I heard this Professor interviewed on the radio about his diagnosis of Aspergers Syndrome (AS) and what it meant. I just sat there open-mouthed. The fact that he was an intellectual, a fully-fledged academic even, who had been diagnosed in his late forties probably helped me. I am a granny of now 62, and I felt the beginning of yet another reckoning, a making peace with myself dawning. As a social worker dealing with mental health clients since my fifties, I had already had many opportunities to reflect when thinking of individual clients’ […]

Autism April

To the person who changed my life: A tribute to Polly Samuel by Jeanette Purkis

April 30, 2017 Spectrum Women

This is probably the hardest thing I have had to write so far. It is also something I desperately need and want to do. When I was asked to write this I felt conflicted. Would it be enough? Would I say the ‘right’ things? Would it do justice to the person it is written for, my first and most influential mentor? This is the sincerest of thank you’s but also an apology for not staying in touch, and not really appreciating what I was given so freely. Now that time is limited I feel I do not have enough to […]

Autism April

Disclosure – The Pros and Cons – Maura Campbell

April 22, 2017 Spectrum Women

Whether to disclose an autism diagnosis is an important issue for many newly diagnosed adults. I would never presume to tell someone in that position what to do, though I would encourage them to take a bit of time to think about it.  What is said cannot subsequently be unsaid. After I was told, in a private consultation, that I had Asperger Syndrome I pretty much burst out of the Aspie closet immediately.  I hadn’t given the matter of disclosure much thought, which was uncharacteristic for me since I usually overthink practically everything.  I was so euphoric on the day […]

Autism April

“Autism Saved My Life” By Becca Lory, CAS, BCCS

April 20, 2017 Spectrum Women

For 36 of my 40 years, I was disabled. I was cut off from the world but for the tiny bubble that was my bedroom. Barely able to care for myself, angry, scared and lonely, I felt hopeless and broken. Suicidal thoughts were a daily reminder of my inadequacies and failures. I was certain there had been a mistake. I was clearly not meant for this existence. That is until autism entered my world and saved my life. I’m certain you must be wondering how a deeply depressed and suicidal, disabled person could have been saved by an autism diagnosis. […]

Autism April

Pieces of April… Peace of April (Poem) — Christine Jenkins

April 16, 2017 Spectrum Women

Every spring the showers start Fresh ideas tumble from my mind and heart Like a basket of mewling kittens I turn each one over with care Make sure they are alive and well I’m tired of the autism war — of the name calling; of the taking sides; of fighting over funding; of folk assuming the autistic one I love is not me I’m sad it took five decades to find my identity How I must compete to be the worst victim To qualify for supports I’m not ageing out; I’m ageing out of sight. Orphaned by the death of […]

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