Developing a National Guideline for Autism Diagnosis in Australia – Viewpoint Survey – Autism CRC

Australia’s first ever national guideline for diagnosing autism is under development.

We strongly believe that these guideline should be informed by the needs and wants of people with lived experience of receiving a diagnosis and not just the perspectives of health professionals, service providers and policy makers. This research project is about creating the opportunity for this to happen.

Please share this study with family members, friends, members and clients so as many people as possible can share their views.

Who can participate? 

  • Adolescents (12 year and over) and adults with a diagnosis of ASD under the DSM-5 (or equivalent DSM-IV diagnosis). Adolescents must have the consent of their guardian to participate.
  • Carers may include parents, grandparents, spouses, siblings, other family members or friends who have been providing some form of unpaid care or assistance to any individual of any age with a diagnosis of ASD under the DSM-5 (or equivalent DSM-IV diagnosis) for at least one hour / week for six months.

What will you be asked to do?

Participating in this research project will involve sorting a number of statements about the autism diagnostic process, ranging them from least to most important to you. Is expected to take no more than 60 minutes in total.

How can I provide my viewpoints?

Email us to express your interest or more information at Emily.Darcy@telethonkids.org.au or Kiah.Evans@telethonkids.org.au.

The viewpoint survey can also be accessed directly at:

http://www.autismcrc.com.au/developing-national-guideline-autism-spectrum-disorder-diagnosis-australia-viewpoint-study.

This research is being conducted by the Cooperative Research Centre for Living with Autism (Ethics Approval Number RA/4/1/8711), and is part of a larger project to develop Australia’s first ever national guideline for diagnosing autism: http://www.autismcrc.com.au/national-guideline-autism-diagnosis-australia.

Thank you so much for your time, we really appreciate it.

Dr Kiah Evans
Project Coordinator
“National Guideline on the Diagnosis of Autism Spectrum Disorder (ASD) in Australia” Project Autism CRC Ltd, Cooperative Research Centre for Living with Autism

C/O Telethon Kids Institute
100 Roberts Road, Subiaco, Western Australia, 6008
PO Box 855, West Perth, Western Australia, 6872

e: Kiah.Evans@telethonkids.org.au  t: 08 9489 7662
w: www.autismcrc.com.au