Survey on Relationships of Adult with Aspergers Syndrome – Research Study

Description of the Research Project

If you are at least 18 years old, you are invited to participate in a survey on communication within the close relationships of people with Asperger’s Syndrome, which will contribute to a better understanding of communication within these relationships. This research project is being undertaken as part of the requirements of a PhD at Edith Cowan University. It should take approximately 10 minutes to complete all sections of the survey.Your participation is completely voluntary. Although unlikely, while participating in this survey, you may feel some slight discomfort or embarrassment if contemplating negative concerns. Should this occur, links are provided at the end of the survey for you to access material on support services to assist with any discomfort you may experience.

In order to participate, you need to identify with one of the following groups:

GROUP ONE are people who have a clinical diagnosis of Asperger’s Syndrome and/or are accessing support services specifically for individuals with Asperger’s Syndrome.

GROUP TWO are people considered to be neurotypical (i.e., not on the Autism Spectrum) and who are in a close relationship (i.e., partner/parent/sibling/offspring) with a person with Asperger’s Syndrome.

When completing the survey, please select only one relevant relationship: partner, parent, sibling, adult offspring, etc. Please also indicate whether you are living together or apart, and length of relationship, regarding the relationship you have selected. If you wish to respond about more than one close relationship, you will need to complete the survey again for each additional one.

Confidentiality of Information

All research data will be treated confidentially, stored under lock and key, accessed only by the research team, and will be destroyed after five years. No participant will be identified in any research reports. All participants will be given a pseudonym. All data gained from the study will be coded. Research findings will be reported as a thesis, at academic conferences, and in journal articles. At no time, however, will your name be used or any identifying information revealed. Should you require, you may decline to answer any question and you are free to choose to withdraw from this study for any reason without affecting relationships with ECU, the research team, or any support services that you access and/or are likely to access. If you do withdraw, all information from you will be destroyed.

This survey is designed to be anonymous. Please do not write your name, or any other comments that will identify you on the survey unless you would like to participate in a follow up interview. If so, there is provision at the end of the survey for you to provide your contact details. If you have any questions, please feel free to contact me at the email address below.

I am happy to discuss any questions about the project and I may be contacted on 0410619558 or by email (bwilso12@our.ecu.edu.au). This project has been approved by the Human Research Ethics Committee at Edith Cowan University.

If you have any concerns about the project or need to discuss any matter regarding this project with an independent person, the Research Ethics Officer may be contacted at: Human Research Ethics Office Edith Cowan University 270 Joondalup Drive JOONDALUP 6027 WA Phone: (08) 6304 2170.

Email: research.ethics@ecu.edu.au

Thank you for your participation in the survey.

Yours sincerely,

Bronwyn Wilson

 

Please click link below to participate in the survey.

https://ecuau.qualtrics.com/SE/?SID=SV_6sNVH8l0WgVQsPH