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THE INVISIBLE PRICE OF ACCOMMODATION — Renata Jurkevythz

October 22, 2018 Spectrum Women

Every accommodation provided for a person with a disability, be it physical or mental, visible or invisible, is usually perceived as something they are getting “for free”. Something is being facilitated for them in a way it wouldn’t for a person without said disability. Supposedly, it is understood that it is not an advantage, but a way to make things less difficult, or simply possible, for someone already struggling with things that are taken for granted by others. Supposedly, of course. Therein lies the first problem disabled people face and that also originates the second one, the title of this […]

Spectrum Women Authors

Meet the Spectrum Women Book Authors: Renata Jurkevythz

May 27, 2018 Spectrum Women

Spectrum Women: Walking to the Beat of Autism is now in its final stages of publication, preparing to be printed for the wide world to see by Jessica Kingsley Publishers, we, the Spectrum Women and authors of this book, felt it would be a great opportunity to tell you a little about ourselves and the reasons why we were part of this incredible project. Each Spectrum Woman has a unique story to tell and today we would like to introduce you to Renata Jurkevythz…   For 35 years of my life, I had no idea I was autistic. By that […]

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How does it feel, not being able to leave my own world? – Renata Jurkevythz

August 10, 2017 Spectrum Women

A while ago I wrote a piece about the feeling of living in my own world. It is a world that exists deep within me, and I am its sole inhabitant and ruler. It is very different from the outside world where this world feels like home to me. It feels natural. With this ascertained, I wanted to explain a different aspect of this world in how hard it is to simply leave it and enter the outer one, where everybody else is. My world is very busy, often confusing and extremely deep, but this is home. This isn’t a […]

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Why We Are Not Puzzle Pieces – Renata Jurkevythz

July 26, 2017 Spectrum Women

So, let’s talk about the dreaded puzzle piece. The community of autistic adults is hurt by it because we perceive it as offensive. On the other hand, non-autistics who have autistic people in their lives, be it a family member, friend, colleague or client, consider it not harmful because it just represents their wish to “figure autistics out”. My goal here is to address both sides and explain why in the end it does hurt people on the spectrum and why, in my humble opinion, it doesn’t actually make sense. Starting from the beginning: non-autistics live in a world that […]

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Behaviour is Language ~ Renata Jurkevythz

July 5, 2017 Spectrum Women

In this insightful and thought provoking piece, Renata talks about how for her, learning languages (English being second to her native Portuguese) significantly compares to learning the innate social cues that non autistic individuals inherently know… People are so quick to doubt my diagnosis of Asperger’s just because I “behave like a regular person” and “don’t look autistic”. This really bothers me! This doesn’t just happen with me, but with the vast majority of diagnosed people that don’t match the male/classic stereotypes. And here lies a substantial problem. Too many of us have to go out proving ourselves all the […]

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Proud of being myself ~ Renata Jurkevythz

June 18, 2017 Spectrum Women

Autistic Pride Day. When I sat at my computer thinking about the best way to address this subject, I realized I just couldn’t think of autism on its own, but of all of my traits as a person. When we talk about being proud of our neurology it is not a lot different to being proud of our physical traits, our nationality or belief systems. Talking about pride is usually very controversial for the simple reason that people see themselves very differently. I might like something about myself, but someone else who is like me might not like that part […]

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Why I Write… A Spectrum Women Collaboration

June 12, 2017 Spectrum Women

Inspired by “Why I Ride”, Barb Cook’s love letter to motorcycling published in Spectrum Women in October 2016, some of the Spectrum Women Writing Team have decided to share their thoughts on their shared passion for writing… Jeanette Purkis I am Autistic and also have schizophrenia. I often joke that it was pretty much guaranteed I would end up being a writer with those two diagnoses and the creativity which so often comes along with them. I started writing young. I got to read out my poetry at school assemblies from about the age of eight. High school English was […]

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How does it feel, to live in my “own world” ~ Renata Jurkevythz

May 19, 2017 Spectrum Women

A very common statement people make about autistics is how they “live in their own world”. For non-autistics it can very much look like the person is locked in, in a parallel world, not acknowledging what goes on around them. For each individual on the autism spectrum, this “inner world” definitely feels different and may have an effect on their interactions with the world around them. Here, I want to explain my personal experience of being in my inner world. Some may resonate with my personal experience and for others it may be completely different. But as human beings, we […]

Autism April

THE SENSORY WORLD – Renata Jurkevythz

April 14, 2017 Spectrum Women

One thing very common to autistic people (but not exclusive to our type of brain) is the so-called “Sensory Processing Disorder”. Being perceived as a disorder, people tend to only refer to the problems it brings… there are indeed many (some very difficult ones), but overall I personally do not like the term “disorder” very much. I prefer calling it a different way to perceive the world through your senses. It might be better or worse, depending on your levels of sensitivity and the situation you are in. It is indeed very different from the “regular” way of processing your […]